Author Biography
Barend Mons is Professor of BioSemantics at the Human Genetics Department of Leiden University
Medical Center and founder of the BioSemantics group. He was elected CODATA President in
2018. Next to his leading role in the research of the group, Barend plays a leading role in the
international development of “data stewardship” for biomedical data. For instance, he was head-
of-node of ELIXIR-NL at the Dutch Techcentre for Life Sciences (until 2015), is Integrator Life
Sciences at the Netherlands eScience Center, and board member of the Leiden Center of Data
Scienza. In 2014, Barend initiated the FAIR data initiative and in 2015, he was appointed Chair of
the European Commission’s High Level Expert Group for the “European Open Science Cloud”,
from which he retired by the end of 2016. Presently, Barend is co-leading the GO FAIR initiative,
an initiative to kick start dvelopments towards the Internet of FAIR data and services, which will
also contribute to the implementation of components of the European Open Science Cloud. IL
focus of the contribution of the BioSemantics group is on developing an interoperability backbone
for biomedical applications in general and rare disease in particular.
ORCID: 0000-0003-3934-0072
Erik Schultes is International Science Coordinator at the GO FAIR International Support and
Coordination Office where he has been working with a diverse community of stakeholders to
develop FAIR data and services. Erik is also a member of the Leiden Center for Data Science at
Leiden University. Erik is an evolutionary biologist with long standing interests in data-intensive
research. In addition to private consulting, he has held previous academic appointments at the
University of California, Los Angeles, The Whitehead Institute for Biomedical Research at the
Istituto di Tecnologia del Massachussetts, Duke University, and The Santa Fe Institute.
ORCID: 0000-0001-8888-635X
Fenghong Liu an Associate Professor at the National Science Library, Chinese Academy of Sciences
(NSLC) and School of Economics and Management, University of Chinese Academy of Sciences.
She received PhD degree at the Institute of Botany, CAS (IBCAS) In 2006. Before joining in NSLC
In 2015, she had been the head of the library of IBCAS for four years. She is currently the Managing
Editor of Data Intelligence (DI) Journal. Her research interests focus on data journals, particolarmente
whether and how data journals foster and promote data sharing awareness and culture across
communities.
ORCID: 0000-0002-3633-1464
Annika Jacobsen is a postdoctoral researcher at the BioSemantics group, Human Genetics
Department, Leiden University Medical Center, The Netherlands. She obtained her Bachelor and
Master degrees at the Technical University of Denmark in 2009 E 2012, and her PhD degree at
the Vrije Universiteit Amsterdam in 2019. Her research interests are to create interoperable FAIR
rare disease data with the aim to learn more about cause, diagnosis and treatment.
ORCID: 0000-0003-4818-2360
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AUTHOR BIOGRAPHY© 2019 Chinese Academy of Sciences Published under a Creative Commons Attribution 4.0 Internazionale (CC BY 4.0) licenza
Ricardo de Miranda Azevedo is an independent and pragmatic researcher with a background
in psychology and clinical epidemiology who is happy to work in multidisciplinary settings. He is
a great multilingual communicator who is enthusiastic about scientific research but also for
computers and teaching different topics. He is often labeled as a creative mind with a problem-
solver attitude.
ORCID: 0000-0002-7641-6446
Nick Juty is a Senior Research Technical Manager in the eScience Lab, based in the Department
of Computer Science at The University of Manchester. He is involved in numerous EU projects
relating to aspects of FAIR and interoperability, particularly with respect to identifier systems and
metadati. Nick previously worked at EMBL-EBI where he helped create the identifiers.org identifier
resolution system. Nick holds a PhD in Biochemistry from the University of Southampton.
ORCID: 0000-0002-2036-8350
Dominique Batista is a young developer specialized in creating tools and software for scientific
researchers and academics. His current activities focus on delivering clean, tested and documented
open-source code to help structuring metadata over the Web. Dominique’s side activities focus on
producing knowledge and scientific papers as well as representing the team in international
conferences. He is passionate about computer (hardware, Web), science (biology and physics),
video games and much more.
ORCID: 0000-0002-2109-489X
Simon J. Coles is Professor of Structural Chemistry at the University of Southampton and Director
of the UK National Crystallography Service. He has promoted open approaches to research and
education in Chemistry for many years and is now also Director of the UK Physical Sciences Data-
science Service.
ORCID: 0000-0001-8414-9272
Ronald Cornet holds a position as associate professor at the department of Medical Informatics
in the Amsterdam Public Health Research Institute, Amsterdam UMC. His research focuses on
semantic interoperability, both from a technical perspective and from a user’s point of view,
including natural language processing. Ronald is involved in health care information standardization,
among others as member of the Dutch, European (CEN) and global (ISO) standardization committees
on health informatics. He is also involved in SNOMED International, which is responsible for
maintenance and further development of SNOMED CT. He chairs the IMIA working group on
Language and Meaning in Biomedicine, and participates in various international projects including
FAIR4Health and European Joint Programme Rare Diseases (EJP-RD).
ORCID: 0000-0002-1704-5980
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Author Biography
Mélanie Courtot is a Metadata Standards coordinator at EMBL-EBI, where her team designs tools
to streamline multi-omics submissions and develops integrated metadata strategies across the
institute’s archival resources and other projects such as FAIRPlus and CINECA, focusing on semantic
enrichment and harmonization for pharmaceutical and cohort data, rispettivamente. In the context of
GA4GH which she joined in 2016, Mélanie co-leads groups working on data access and encoding
as well as clinical and phenotypic standards.
ORCID: 0000-0002-9551-6370
Mercè Crosas is Harvard University’s Research Data Officer, with Harvard University Information
Tecnologia (HUIT), and Chief Data Science and Technology Officer at Harvard’s Institute for
Quantitative Social Science (IQSS). In her role at HUIT, Dr. Crosas provides leadership to mature
Harvard’s data management and governance practices. She works in close collaboration with key
constituencies in Research, Information Technology, and the Library to coordinate support for the
data lifecycle and guide university policy, processi, and procedures for research data. Dr. Crosas
brings to this role a wealth of experience in data management architecture and international
community data standards as well as the vision to make data more accessible for research while
preserving privacy.
ORCID: 0000-0003-1304-1939
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Michel Dumontier is the Distinguished Professor of Data Science at Maastricht University and
co-founder of the FAIR (Findable, Accessible, Interoperable and Reusable) data principles. His
research focuses on the development of computational methods for scalable and responsible
discovery science. Previously at Stanford University, Dr. Dumontier now leads the interfaculty
Institute of Data Science at Maastricht University to develop socio-technological systems for
accelerating scientific discovery, improving human health and well-being, and empowering
communities with ethical data-driven decision making.
ORCID: 0000-0003-4727-9435
Carole Goble is Professor of Computer Science at The University of Manchester. Over the past 25
years Carole has pursued research interests in the acceleration of FAIR scientific innovation through:
distributed computing, workflows and automation; knowledge management and the Semantic
Web; social, virtual environments; software engineering for scientific software; and new models of
scholarship for data-intensive science. Carole has served on numerous committees and currently
serves in the G7 Open Science Working Group as the UK expert. In 2008 she was awarded the
Microsoft Jim Gray e-Science award for contributions to e-Science and in 2010 was elected a
Fellow of the Royal Academy of Engineering. In 2014 she was awarded the Commander of the
Order of the British Empire for services to Science.
ORCID: 0000-0003-1219-2137
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Author Biography
Giancarlo Guizzardi is currently a professor of computer science and head of the Conceptual
and Cognitive Modeling Research Group (CORE) at the Free University of Bozen-Bolzano, Italy.
He has a PhD in Computer Science (with the highest distinction) from the University of Twente,
The Netherlands. He has been working for more than two decades in the interplay between formal
and applied ontology, cognitive science, philosophical logics, linguistics, and computer science
(in particular, in the areas of conceptual modeling, enterprise modeling and knowledge
representation). He has published circa 270 papers, many of which have received best paper
awards in important conferences. He has also played a multitude of roles in key conferences in
the field (per esempio., general chair, program committee chair, and keynote speaker). Finalmente, he is an
associate editor for the Applied Ontology journal, member of a number of international journal
editorial boards, and of the Advisory Board of the International Association for Ontology and its
Applications (IAOA).
ORCID: 0000-0002-3452-553X
Ali Hasnain is a Lecturer and Researcher at Insight Centre for Data Analytics, National University
of Ireland Galway (NUIG). Before joining DERI, Hasnain completed a master’s degree in “Engineering
and Management of Information Systems” from Royal Institute of Technology, KTH, Stockholm,
Sweden. He received another master’s degree from the same University in “Project Management
and Operational Development”. Career spans over five years of experience in Software industry
and more than a decade in academia at various positions. It includes work experience as Lecturer,
Senior Researcher, Project Manager and lead scientist. Teaching responsibilities at NUI Galway
includes mentoring and co-supervising master’s and PhD students. With strong scientific publishing
record the list of selected Scientific Publications in the Field of Computing, Data Analytics, Software
Engineering and Data Science positively reviewed and published at world renowned Journals and
conferences can be seen at: https://goo.gl/eYNoas (around 650 citations). Ali Hasnain is the
Program Committee Member of international conferences and workshops e.g, VOILA-ISWC and
KESW. He remained involved in organizing workshops and tutorial at K-Cap 2015 and SWAT4LS
2015–2018 for international audiences. His current research interests include: FAIR DATA, Open
Data, Big Data, Semantic Models, Data Cataloging/Linking, Visual Interfaces and Data Integration.
ORCID: 0000-0003-4014-4394
Kristina Hettne, PhD, is a Digital Scholarship Librarian at the Centre for Digital Scholarship,
Leiden University Libraries in Leiden, The Netherlands. At the Centre, she helps researchers navigate
Open Science and shape the future of research data management. She is the Centre’s liaison with
GO FAIR and part of the FAIR Convergence Matrix development team for optimizing the reuse of
existing FAIR-related resources. She obtained her PhD degree in bioinformatics of toxicogenomics
from the University of Maastricht in 2012. She is a review editor for “Frontiers in Big Data”,
member of the Advisory Board of the Wiley journal Genetics & Genomics Next, and co-author of
more than 30 research publications.
ORCID: 0000-0002-4182-7560
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Author Biography
Jaap Heringa is full professor of Bioinformatics and director of the Centre for Integrative
Bioinformatics (IBIVU) at Vrije Universiteit of Amsterdam, The Netherlands. Heringa has been
scientific co-director of the Netherlands Bioinformatics Centre (NBIC) from 2009–2013. He has
served as deputy Head of Node of ELIXIR-NL from 2013–2016, and since April 2016 as its Head
of Node. Since 2014 he has been director of the Netherlands Bioinformatics and Systems Biology
Research School (BioSB) and as of January 2016 he has been scientific lead of the Dutch Techcentre
for Life Sciences (DTL). Heringa has been executive editor of Molecular Data Science since 2018
and became head of the Department of Computer Science at Vrije Universiteit in that same year.
His areas of research are Bioinformatics and Systems Biology, while current research interests
revolve around formal modeling strategies, new sequence analysis strategies, protein structure and
interaction prediction, cancer-related data integration, and semantic Web-based data stewardship
and data-tools interoperability.
ORCID: 0000-0001-8641-4930
Rob Hooft is Manager of the Dutch tasks in the European ELIXIR infrastructurefor life science data,
at the Dutch Techcenter for Life Sciences (DTL). After working for many years in the industry, Rob
moved back to the academic world and joined the Netherlands center for Bioinformatics, NBIC,
as CTO for the service-directed program. Via a two-year excursion to the Netherlands eScience
Center from where he ran the data program of DTL he is now working for DTL itself. Rob has been
building up a body of knowledge on FAIR research data stewardship since early 2014. Rob also
represents ELIXIR relations in the Research Data Alliance.
ORCID: 0000-0001-6825-9439
Melanie Imming authored reports on FAIR Data and Data Stewardship practices in The Netherlands
for SURF and the Dutch National Contact Point for Research Data Management, LCRDM. As a
consultant with a strong international network in the area of Open Science, FAIR Data and Digital
Cultural Heritage, Melanie is experienced in project management and engaging stakeholders from
different domains, and a known advocate for Open Science practices.
ORCID: 0000-0003-2376-9755
Keith Jeffery is an independent consultant working on EPOS, ENVRIplus and ENVRIFAIR as well
as on advanced CLOUD computing and Virtual research Environments. He is past Director IT at
STFC with 360,000 utenti, 1,100 servers and 140 staff. Keith holds three honorary visiting
professorships, is a Fellow of the Geological Society and the British Computer Society, a Chartered
Engineer & IT Professional and an Honorary Fellow of the Irish Computer Society. Keith is past-
President of ERCIM and euroCRIS, and serves on international expert groups, conference boards
and assessment panels. He had advised government on IT. He chaired the EC Expert Groups on
GRIDs and on CLOUD Computing.
ORCID: 0000-0003-4053-7825
Rajaram Kaliyaperumal was born in Pondicherry, India. He received a B.Tech degree in Biomedical
Engineering from Pondicherry University, India in 2008 and an M.Sc degree in Biomedical
Engineering from Linköping University, Sweden in 2011. In 2012 he joined the department of
Computer and Information Science, Linköping University as a software engineer. During this time
he developed methods and tools to align and repair ontologies. In 2013 he joined the Biosemantics
group, Leiden, in the Netherlands as a software developer. His current research activities include
investigating the use of semantic Web technology in the context of FAIR data and developing
prototypes to demonstrate the use of FAIR data.
ORCID: 0000-0002-1215-167X
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Martijn Kersloot is a PhD candidate at the Department of Medical Informatics in the Amsterdam
UMC in collaboration with Electronic Data Capture platform Castor EDC. He has a background in
Medical Informatics and his research focuses on the creation of a scalable solution that will aid in
the standardization of medical research data.
ORCID: 0000-0003-3357-3027
Tobias Kuhn is an assistant professor at the Computer Science department of the VU University
Amsterdam. After receiving his PhD at the Institute of Computational Linguistics of the University
of Zurich in 2010, he worked at the University of Malta, Yale University, and ETH Zurich. His
research interests span fields including knowledge representation, controlled natural language,
socio-technical systems, and scholarly communication. His recent work focuses on the approach
of nanopublications, how cryptographic methods and provenance modelling can support trust and
reliability, and how this can support the initiatives around the FAIR principles for data management.
ORCID: 0000-0002-1267-0234
Ignasi Labastida is currently the work at the Head of the Research Unit at the University of
Barcelona’s Learning and Research Resources Centre (CRAI) where he also leads the Office for the
Dissemination of Knowledge. He is currently chairing the Board of SPARC Europe and he is a
member of the Steering Committee of the Info and Open Access Policy Group at the League of
European Research Universities (LERU). He is the co-author of the LERU Roadmap for Research
Data and the LERU Roadmap on Open Science. He has participated in several research projects
including LEARN, a EU H2020 project focused on helping research performing institutions in
managing their research data.
ORCID: 0000-0001-7030-7030
Barbara Magagna holding a master degree in landscape planning and in geoinformatics, ha
24 years of experience working in the field of GIS, landscape ecology modelling and database
management for projects operating at different scales. Her interests and formation moved in the
last years also towards ontology engineering and process facilitation, abilities she could already
apply in several national and European semantic projects. She had been working for the University
of Natural Resources and Applied Life Sciences, the University of Vienna and since December 2007
for the Federal Environment Agency (Umweltbundesamt GmbH) where she undertakes the function
of a semantic analyst and database designer. She was involved in FP7 and H2020 projects as
facilitator in the development process of terminologies like SERONTO and EnvThes. She has
experience as work package lead related to data management, in the design of UML models and
XML schemas in the air quality data reporting area, in the design of semantic models in projects
related to Environmental Research Infrastructures (ENVRI).
ORCID: 0000-0003-2195-3997
Peter McQuilton holds a 1st class BSc (Hons) degree in Genetics from the University of Leeds
(2000) and a PhD (2004) in Drosophila neurodevelopment from the University of Cambridge. Peter
has spent over 15 years working in the fields of bioinformatics, biocuration and data wrangling,
first as a genetic literature curator at FlyBase, the premier database on drosophila genes and
genomes, and then as part of the Data Readiness Group at the Oxford e-Research Centre. As part
of the Data Readiness Group, Peter leads the FAIRsharing project. FAIRsharing is a manually
curated, searchable portal of interlinked standards, databases and policies, from all domains.
ORCID: 0000-0003-2687-1982
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Natalie Meyers is an E-Research librarian at University of Notre Dame’s Navari Family Center for
Digital Scholarship where she helps pioneer and provide research data consulting services,
including more in-depth data management services in support of grant-funded research. She serves
as an ambassador and advisor to groups and individuals regarding data and digital content
management. She provides advice & works with units across campus and externally to provide
collaborative, team-based support for reproducible research, data management and software
preservation needs, as well as data and metadata services for the Navari Center for Digital
Scholarship.
ORCID: 0000-0001-6441-6716
Annalisa Montesanti is the Program Manager at the Health Research Board (HRB). She is
responsible for developing and managing a portfolio for health research careers in order to develop
a coordinated approach to building capacity in health research in Ireland. She has developed a
framework promoting the training, support and career development of academic researchers and
health practitioners with the long-term goal of training individuals as collaborative researcher in
order to generate ideas and undertake research, drive the integration of research and evidence into
policy and practice, thus improving decision-making and, ultimately, health outcomes and creating
a wider impact in society. Annalisa is also deeply involved in promoting open science, FAIR data
and research data stewardship through several international collaborations. Annalisa had many
years of experience in scientific research in in Italy, England and Ireland. She has a BSc from
Palermo University in Italy and a PhD in cancer biology from the Institute of Molecular Medicine
in Oxford, UK.
ORCID: 0000-0003-0413-2003
Mirjam van Reisen is Professor International Relations, Innovation and Care at Tilburg University
and Professor Computing for Society at Leiden Centre for Data Science, at the University of Leiden.
Van Reisen is Research Leader of the Globalization, Accessibility, Innovation and Care (GAIC)
rete. Van Reisen is the Coordinator of the Go-FAIR Implementation Network Africa. Van Reisen
is a member of the Dutch Advisory Council on International Affairs (AIV) and Chair of the
Development Assistance Committee (COS). Van Reisen leads the oganisation EEPA in Brussels. She
is a member of the Board of Philips Foundation and the SNV Netherlands Development Organisation.
Van Reisen received the Golden Image Award in 2012 by President Ellen Johnson Sirleaf.
ORCID: 0000-0003-0627-8014
Philippe Rocca-Serra, after an engineering degree from University of Rennes, received his PhD
in Molecular Genetics from University of Bordeaux. He worked at EMBL-EBI in helping establish
the European microarray archive. He has 10 years of practice in data management and has been
an active member of several standardization efforts, aiming at promoting open data and open
science vision. He is technical coordinator of the ISA project, part of the OBO Foundry editorial
board and participates in resource development as part of the OBI project.
ORCID: 0000-0001-9853-5668
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Robert Pergl is an Associate Professor at Department of Software Engineering, Faculty of Information
Technologies of Czech Technical University in Prague, Czech Republic, where he founded “Centre
for Conceptual Modelling and Implementation”, a group focusing on research, development and
applications of methods and tools for ontological engineering, enterprise engineering, software
engineering and data stewardship. Robert Pergl is a National Node Committee member of ELIXIR
Czech Republic. He is a member of several GO FAIR initiatives and projects and together with
Rob Hooft he leads the Data Stewardship Wizard development. Contribution: Leading the authors’
team and authoring process, communications author, copy-editing and quality assurance, Data
Stewardship Wizard details.
ORCID: 0000-0003-2980-4400
Susanna-Assunta Sansone is an Associate Director, Associate Professor and Principal Investigator
at the Oxford e-Research Centre, part of the Department of Engineering Science at the University
of Oxford. She is one of the authors of the FAIR principles and an active contributor to a variety
of community-driven FAIR-enabling efforts. Her group researches and develops methods and tools
to improve data reuse, for data transparency, research integrity and the evolution of scholarly
publishing: https://sansonegroup.eng.ox.ac.uk.
ORCID: 0000-0001-5306-5690
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Luiz Olavo Bonino da Silva Santos is the International Technology Coordinator of the GO FAIR
International Support and Coordination Office, and Associate Professor of the BioSemantics group
at the Leiden University Medical Centre in Leiden, The Netherlands. His background is in ontology-
driven conceptual modelling, semantic interoperability, service-oriented computing, requirements
engineering and context-aware computing. In the last five years Luiz has been involved in a number
of activities to realize the FAIR principles, including the development of a number of technologies
and tools to support making, publishing, indexing, searching and annotating FAIR (meta)dati.
ORCID: 0000-0002-1164-1351
In a 20-year career specializing in metadata, ontologies and discovery, Juliane Schneider has
worked in start-ups, on Wall Street in an insurance library, at New York University medical center,
for EBSCO publishing, and at The University California, San Diego in the Research Data Curation
Programma. Her longest stint at any job was the six years she spent at Countway Library as the
Metadata Librarian, and now she has returned to Harvard as the Team Lead/Lead Data Curator for
Harvard Catalyst.
ORCID: 0000-0002-7664-3331
George O. Strawn is currently the director of the Board on Research Data and Information at the
National Academies of Sciences, Engineering, and Medicine where he focuses on Open Science
and FAIR data. Prior to joining the Academies, Dr. Strawn was the director of the National
Coordination Office (NCO) for the Networking and Information Technology Research and
Development (NITRD) Program and co-chair of the NITRD interagency committee.
ORCID: 0000-0003-4098-0464
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Mark Thompson is a senior research scientist in the Biosemantics group at the Human Genetics
department of Leiden University Medical Centre. He obtained a PhD in Computer Science from
the University of Amsterdam in 2012. He has expertise in hardware and software architecture (co-)
progetto, data management, data modeling, FAIR data infrastructure and computational aspects of
knowledge discovery.
ORCID: 0000-0002-7633-1442
Tobias Weigel is working at the German Climate Computing Center (DKRZ) in the area of
e-infrastructures. Tobias has worked extensively on Digital Object and Persistent Identifier services
in multiple contexts, including community cyberinfrastructures (ESGF, ENVRI) and cross-disciplinary
infrastructures (EUDAT, EOSC). He has co-chaired multiple working groups of the Research Data
Alliance (RDA) to convene on technical recommendations in the area of identifiers, metadata and
related e-infrastructures services. Tobias is editorial board member of the CODATA Data Science
Journal and member of the RDA Technical Advisory Board. Tobias holds a PhD from University of
Hamburg in computer science.
ORCID: 0000-0002-4040-0215
Mark D. Wilkinson is Fundacion BBVA Chair in Biotechnology and Isaac Peral Distinguished
Researcher at the Center for Plant Biotechnology and Genomics, Technical University of Madrid.
For the past 15 years, his laboratory has focused on designing biomedical data/tool representation,
discovery, and automated reuse infrastructures – what would now be called “FAIR”. He is lead
author of the primary FAIR Data Principles paper, and lead author on the first paper describing a
reference implementation of those principles over legacy data. He is a founding member of the
FAIR Metrics Authorship Group, tasked with defining the precise, measurable behaviors that FAIR
resources should exhibit. Beyond FAIR, his laboratory also studies the application of Artificial
Intelligence techniques to the problem of microbiome engineering.
ORCID: 0000-0001-6960-357X
Egon L. Willighagen is applying cheminformatics and chemometrics to biological questions as
Assistant Professor at Maastricht University. He has been promoting Open Science for many years
and is Editor-in-Chief of the Journal of Cheminformatics.
ORCID: 0000-0001-7542-0286
Peter Wittenburg was Executive Director of Research Data Alliance (RDA) Europe, Member of
RDA Technical Advisory Board, and Scientific Coordinator of European Data Infrastructure (EUDAT).
He set up and led the Technical Group with about 30 experts at Max Planck Institute (MPI) for
Psycholinguistics and then led the Language Archiving Group with about 25 experts. Since 2000
he has played leading roles in a variety of European (funded by the European Commission) E
national projects (funded by MPS, DFG, BMBF, NWO 23) and ISO initiatives (ISO TC37/SC4). Lui
won the Heinz Billing Award of the MPS for the advancement of scientific computation in 2011
and received an honorary doctorate from University Tübingen in 2013.
ORCID: 0000-0003-3538-0106
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Marco Roos is assistant professor and group leader of the Biosemantics group of the Leiden
University Medical Centre (Human Genetics Department). The group is known for co-founding and
advocating the FAIR data principles. His research focus is on making state-of-the-art computer
science applicable to enhance biomedical research (e-Science), particularly the application of
computational knowledge discovery and linked data techniques to address translational research
challenges of rare human diseases. At an international level, Marco is focused on the implementation
of FAIR principles to create a powerful substrate and worldwide robust infrastructure for knowledge
discovery across distributed rare disease data resources.
ORCID: 0000-0002-8691-772X
Sarala Wimalaratne spent the last 10 years at the European Bioinformatics Institute (EMBL-EBI)
working with multiple data integration and infrastructure projects. During her time at the EMBL-EBI,
she led the Identifiers.org resource, which provides stable identifier resolution for life science data
and beyond. She was also involved in the Data Commons Pilot Phase Consortium on globally
unique identifiers (GUIDs), the Elixir Interoperability Platform on BioSchemas and Identifiers, IL
FORCE11 Data Citation Implementation Pilot on Identifiers and the EU FREYA Project on identifier
services. From September 2019, she will be joining DataCite as Head of Infrastructure Services.
ORCID: 0000-0002-5355-2576
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Stian Soiland-Reyes is a Technical Architect in the eScience Lab, based in the Department of
Computer Science at The University of Manchester. Since 2006 he has worked as a software
engineer and researcher focusing on reproducibility, scientific workflows, interoperability, linked
dati, metadata and open science. He is a persistent advocate of Open Scholarly Communication,
and is on the leadership team of the Common Workflow Language and on the Project Management
Committee of several open source projects at the Apache Software Foundation. He co-created the
Research Object model, contributed to the W3C provenance model PROV-O and multiple Linked
Data initiatives. He is co-chair of the Research Object Crate team.
ORCID: 0000-0001-9842-9718
John Kunze is an Identifier Systems Architect at the California Digital Library. With a background
in computer science and mathematics, he wrote BSD Unix software that comes pre-installed with
Mac and Linux systems. He created the ARK identifier scheme, the N2T.net scheme-agnostic
resolver, and contributed heavily to Internet standards for URLs (RFC1736, RFC1625, RFC2056),
archiving (BagIt – RFC8493), Web archiving (WARC), and Dublin Core metadata (RFC2413,
RFC2731).
ORCID: 0000-0001-7604-8041
Tim Clark is Associate Professor of Public Health Sciences, Associate Professor of Neurology (by
courtesy), and Associate Research Director for Neuroinformatics in the Data Science Institute, at
the University of Virginia. He holds a PhD in Computer Science from The University of Manchester.
His research interests include biomedical knowledge representation, computational models of
evidence, cloud computing, and neuroscience.
ORCID: 0000-0003-4060-7360
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Ulrich Schwardmann is deputy leader of the eScience working group of the GWDG, a joint
compute and IT competence center of the university and the Max Planck Society, and leads there
the data management activities of GWDG. He has a doctoral degree in mathematics and has a
long lasting background in scientific computing. Ulrich Schwardmann is working with persistent
identifiers as enabling technology for research data management since almost ten years. He is
speaker of the management board of ePIC, the Persistent Identifier Consortium for eResearch, E
is DONA-MPA System Administrator for GWDG. His current research interests include Digital
Object Interface Protocol, PID Information Types and Data Type Registration, PID profiles and
policies.
ORCID: 0000-0001-6337-8674
Jens Klump leads the Geoscience Analytics Team in the Mineral Resources Unit of the
Commonwealth Scientific and Industrial Research Organization (CSIRO). Jens’ work focuses on
data in minerals exploration, investigating the digital value chain from data capture to data analysis
and decision making. This value chain includes automated data and metadata capture, sensor data
integration, both in the field and in the laboratory, data processing workflows, and data analysis
by statistical methods, machine learning and numerical modelling. Jens obtained degrees in
geology and oceanography from the University of Cape Town, South Africa, and received his PhD
in marine geology from the University of Bremen, Germany.
ORCID: 0000-0001-5911-6022
Sofiane Bendoukha is a computer scientist at the German Climate Computing Center (DKRZ)
within the data management group. For years, Sofiane has been working on scientific workflow
management systems, service orchestration and workflow modeling. After joining DKRZ, he
focused more on the development of software tools for the climate community related to the
management of persistent identifiers and Handle servers in the EUDAT project. Currently, Sofiane
is a deputy leader in the EOSC-HUB project. He is responsible of designing, implementing and
deploying reliable and user-friendly compute services to scientists related to the climate domain.
Sofiane holds a PhD in computer science from the University of Hamburg, Germany.
ORCID: 0000-0002-8959-2027
Rob Quick is the Associate Director of the Science Gateways Research Center with the Pervasive
Technology Institute at Indiana University. Rob has been working with interoperability of
international cyberinfrastructure for more than 15 years. This includes holding the position of Chief
Operations Officer for the Open Science Grid and managing the XSEDE Science Gateways Support
Services. In recent years he has turned his focus from interoperability of research computing
infrastructure to data interoperability. This includes NSF funding (NSF #1659310 E #1839013)
to create and operate the Robust Persistent Identification of Data (RPID) testbed which provides a
set of testbed services to allow researcher to implement the FAIR principles within the Digital
Object Architecture. Rob holds a degree in Physics from Purdue University.
ORCID: 0000-0002-0994-728X
Annalisa Landi, PharmD, II level post-graduate Master in Regulatory Sciences “G.Benzi” at
University of Pavia, Researcher at Fondazione per la Ricerca Farmacologica Gianni Benzi Onlus.
She is involved in scientific and regulatory activities, in particular related to data protection and
confidentiality, plan and management of patient registries and medicine databases management.
ENCePP WG3 member.
ORCID: 0000-0001-9368-6424
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Viviana Giannuzzi, PharmD, PhD in pharmacology, post-graduate master in Clinical Research of
Medicines, Senior Researcher at Fondazione per la Ricerca Farmacologica Gianni Benzi Onlus and
Head of the Research Department. Her main areas of expertise are: ethics and regulatory, non-
clinical and clinical research, clinical studies application, pharmacology, orphan medicines and
paediatric research. She is patient representative at Paediatric Committee, European Medicine
Agency (EMA), and member of WP4 Ethics Working Group of EnprEMA.
ORCID: 0000-0002-2534-6783
Fedele Bonifazi, Biomedical engineer, II level Master in Health Technology Assessment and
Management, President of Fondazione per la Ricerca Farmacologica Gianni Benzi Onlus. Member
of the HTA working group of the Regional Agency for Health and Social issues AReSS Puglia; expert
of the Health Department of the Basilicata Region. At the Benzi Foundation, he is project manager
and WP leader in several research projects and Head of the IT & Research Laboratory.
ORCID: 0000-0003-4935-5702
Christopher Brewster is a Senior Scientist in the Data Science group at TNO, and Professor of
Emerging Technologies at the Institute for Data Science, Maastricht University, The Netherlands.
His PhD was in ontology learning from text from the University of Sheffield. His main research
interests are the application of semantic technologies and more generally artificial intelligence (AI)
to supply chains and the agri-food sector, and the ethical and social implications of the widespread
use of data science and AI.
ORCID: 0000-0001-6594-9178
Barry Nouwt (MSc) is a medior Scientist in semantic technology at TNO within the Data Science
department. He obtained a BSc degree in Computer Science from the Saxion University of Applied
Sciences and an MSc degree in Artificial Intelligence at Utrecht University in 2008. Until 2015,
he worked with SemLab B.V. on commercial applications of natural language processing (PNL) E
Semantics, primarily in the Financial and Government domain. At TNO, Barry’s research activities
center around ontologies, model-driven development and semantic reasoning with a focus on
increasing the value of formalized domain knowledge.
ORCID: 0000-0002-9527-6039
Stephan Raaijmakers is specialized in machine learning-based natural language processing. Lui
received his PhD on information geometry for kernel machines from Tilburg University in 2009.
At TNO, he works on a variety of artificial intelligence-related topics, including explainable deep
apprendimento. Recentemente, he has been appointed as professor in Communicative AI at Leiden University.
ORCID: 0000-0003-2984-6889
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Jack Verhoosel is a Senior Scientist at TNO and is part of the Data Science department within
TNO. His group focuses on semantic interoperability, cioè., the efficient and effective use of
information technology (IT) for the cooperation and information sharing between organizations.
He specializes in semantic technology, artificial intelligence (AI) reasoning and data analytics.
Research topics include (1) knowledge modelling in ontologies, (2) semantic Web and reasoning
technology for data integration and (3) data analytics technology for big data applications. Lui
applies his knowledge in various industry sectors, among others agriculture, industry, defence and
the electronic government domain.
ORCID: 0000-0002-0121-636X
Paul Groth is Professor of Algorithmic Data Science at the University of Amsterdam where he
leads the Intelligent Data Engineering Lab (INDElab). He holds a PhD in Computer Science from
the University of Southampton (2007). His research focuses on intelligent systems for dealing with
large amounts of diverse contextualized knowledge with a particular focus on Web and science
applications.
ORCID: 0000-0003-0183-6910
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Helena Cousijn is DataCite’s Community Engagement and Communications Director. She has
committed to DataCite’s mission of enabling data sharing and reuse and is especially passionate
about data citation. Before joining DataCite, Helena worked as Senior Product Manager for
Research Data Management Solutions at Elsevier. She holds a DPhil in Neuroscience from the
University of Oxford.
ORCID: 0000-0001-6660-6214
Kees Burger is a software engineer associated with the Vrije Universiteit and the Biosemantics
group at the Leiden University Medical Center. He has been working with pioneers in data sharing
and interoperability standards since 2009, developing expertise in software design and architecture,
semantic Web technology, and FAIR data infrastructure. His current activities involve the Personal
Health Train (PHT) and broader the Internet of FAIR Data and Services (IFDS).
ORCID: 0000-0002-5437-779X
Oya Beyan is a researcher at Fraunhofer Institute for Applied Information Technology and at the
Department of Computer Science at RWTH Aachen University. Her research focuses on methods
of data reusability and FAIR data, data-driven transformation and distributed analytics. Her area of
expertise is in the semantic Web technologies and application of them in health care and life
sciences. She actively contributes to the national and international initiatives to enable the adoption
of FAIR principles and develops tools and infrastructures supporting FAIR data. With her
interdisciplinary background in informatics, medical informatics and sociology, she developed a
focus on societal reflections of data-driven change.
ORCID: 0000-0001-7611-3501
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Ananya Choudhury is a researcher and PhD Student at Clinical Data Science Group, Maastro
Clinic, Maastricht University. Her research focuses on methods and infrastructure of privacy
preserving distributed learning on clinical data, tools and methods for data FAIR-ification and
learning models on FAIR data for improving patient care.
ORCID: 0000-0001-9847-8165
Johan van Soest holds a PhD from Maastricht University on centralized and distributed learning
of prognostic/predictive models in radiation oncology focusing on knowledge representation,
methods for validation of existing models and translation into clinical practice. He is currently
active as Postdoctoral Researcher in the Department of Radiation Oncology at MAASTRO clinic
and the university’s Institute of Data Science.
ORCID: 0000-0003-2548-0330
Oliver Kohlbacher is a Chair for Applied Bioinformatics at the University of Tübingen, Director
of the Institute for Translational Bioinformatics at University Hospital Tübingen, and a Fellow at the
Max Planck Institute for Developmental Biology. The lab’s current research focus is on developing
methods and tools for the analysis of biomedical high-throughput data and their application in
translational research.
ORCID: 0000-0003-1739-4598
Lukas Zimmermann is a research assistant and software developer at the Institute for Translational
Bioinformatics at the University Hospital Tübingen with a background in Bioinformatics. His
research interests currently focus on data integration and software design and quality in medical
informatics.
ORCID: 0000-0002-9596-5432
Holger Stenzhorn is working at the Saarland University Medical Center coordinating the
development and organizational set-up of a medical data integration center (meDIC) as well as
supporting the Tübingen University Hospital in its meDIC work. His particular interest lies on the
seamless integration of the multimodal, multilevel and multisource data from the plethora of
clinical and research systems found within hospitals and medical centers to facilitate further
biomedical research.
ORCID: 0000-0001-9744-174X
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Md. Rezaul Karim is a researcher at Fraunhofer FIT, Germany and a PhD candidate at RWTH
Aachen University, Germany. He is working towards developing a distributed knowledge pipeline
with knowledge graphs and neural networks towards making them explainable and interpretable.
His research interests include machine learning, knowledge graphs, bioinformatics, and explainable
artificial intelligence (XAI).
ORCID: 0000-0001-6804-9183
Stefan Decker is the director of Fraunhofer FIT, Germany and Professor of Computer Science at
RWTH Aachen University, Germany. He was the director of Insight Centre for Data Analytics, E
professor of informatics at NUI Galway, Ireland between 2006 E 2015. His research interests
include Semantic Web and linked data, knowledge representation, and neural networks.
ORCID: 0000-0001-6324-7164
Andre Dekker is a board-certified medical physicist at MAASTRO Clinic and full professor at
Maastricht UMC+ and Maastricht University where he holds the chair “Clinical Data Science”. His
research focuses on three main themes: 1) building global FAIR data sharing infrastructures; 2)
machine learning outcome prediction models from the data; 3) applying outcome prediction
models to improve lives of patients. The main scientific breakthrough has been the development
of a Semantic Web and ontology based data sharing and distributed learning infrastructure that
does not require data to leave the hospital. This has reduced many of the ethical and other barriers
to share data.
ORCID: 0000-0002-0422-7996
Sarah Cohen-Boulakia is a full Professor at the Laboratoire de Recherche en Informatique at
Universite Paris-Sud. She holds a PhD in Computer Science and a Habilitation from the same
university. She has been working for fifteen years in multi-disciplinary groups involving computer
scientists and biologists of various domains. She spent two years as a postdoctoral researcher at
the University of Pennsylvania, USA and 18 months at the Institute of Computational Biology (IBC)
of Montpellier, France. Dr. Cohen-Boulakia’s research interests include provenance and design of
scientific workflows, reproducibility of scientific experiments, integration, querying and ranking in
the context of biological and biomedical databases. She currently co-animates a National working
group on reproducibility of scientific experiments and she is involved in the European Research
Infrastructure ELIXIR (https://www.elixir-europe.org/).
ORCID: 0000-0002-7439-1441
Daniel Garijo is a computer scientist at the Information Sciences Institute of the University of
Southern California. His research activities focus on e-Science and the Semantic Web, specifically
on how to increase the understandability of software and scientific workflows using their associated
provenance, metadata and intermediate results. Daniel was a member of the W3C Provenance
Working Group to develop a standard for provenance on the Web, and he is currently collaborating
with domain scientists to ease the description and composition of software in environmental and
social sciences.
ORCID: 0000-0003-0454-7145
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Yolanda Gil is Director of Knowledge Technologies and Associate Division Director at the
Information Sciences Institute of the University of Southern California, and Research Professor in
Computer Science and in Spatial Sciences. She is also Associate Director of Interdisciplinary
Programs in Data Science at USC. She received her M.S. and PhD degrees in Computer Science
from Carnegie Mellon University, with a focus on artificial intelligence. Her research is on intelligent
interfaces for knowledge capture and discovery, which she investigates in a variety of projects
concerning knowledge-based planning and problem solving, information analysis and assessment
of trust, semantic annotation and metadata, and community-wide development of knowledge
bases. Dr. Gil collaborates with scientists in different domains on semantic workflows and metadata
capture, social knowledge collection, computer-mediated collaboration, and automated discovery.
She initiated and chaired the W3C Provenance Group that led to a community standard in this
area. Dr. Gil is a Fellow of the Association for Computing Machinery (ACM), and Past Chair of its
Special Interest Group in Artificial Intelligence. She is also a Fellow of the Association for the
Advancement of Artificial Intelligence (AAAI), and was elected as its 24th President in 2016.
ORCID: 0000-0001-8465-8341
Michael R. Crusoe is one of the co-founders of the Common Workflow Language project and the
CWL Project Lead. His facilitation, technical contributions, and training on behalf of CWL draw
from his time as the former lead developer of C. Titus Brown’s k-h-mer project, his previous career
as a sysadmin and programmer, and his experiences in various Free and Open Source Software
communities. This is not Michael’s first time working on a standards project as he was the technical
author of the International Labour Organization’s Seafarers’ Identity Card (2003) standard which
is in force and ratified by 32 countries. Currently based in Berlin, Germany; Michael has been
living in Europe for the last 4 years where he has enjoyed partnering with ELIXIR, ASTRON, E
the EOSCPilot to build collaborations across the continent and across the world.
ORCID: 0000-0002-2961-9670
Kristian Peters is currently working at the Leibniz Institute of Plant Biochemistry. He is part of the
Germany network of bioinformatic infrastructures (de.NBI) and is a member of the GoFAIR
metabolomics implementation network and the societies NBS and BLAM e.V. which focus on
bryophyte biology and ecology. As he has studied both Information Technology and Biology his
research focus is mainly on interdisciplinarity and integrating the research fields biochemistry,
bioinformatics and ecology. His expertise in data integration covers a wide range of topics,
including cloud e-infrastructures, statistics, machine
apprendimento, chemical ecology and
ecometabolomics, targeted and untargeted metabolomics, plant and vegetation ecology, bryophyte
biologia, macro- and microscopy and climate change biology. His current research activities focus
on the integrative data analysis and characterisation of compound classes of rare species in
ecological contexts, creating scientific computational workflows for use cases in ecometabolomics
and biomedicine, promoting the reproducibility and interoperability of software tools and the
adoption of standardized research objects and formats.
ORCID: 0000-0002-4321-0257
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Daniel Schober, a trained neurobiologist, did his PhD in medical knowledge engineering at
Charité Hospital, Berlin. He mainly works in the areas of symbolic artificial intelligence, ontology
engineering, policy management and data standard development. Aside his contributions to a
multitude of description logics ontologies, he created best practices for the OBO Foundry (naming
conventions) and developed open access XML standards for nuclear magnetic resonance data
(nmrML). Foundational ontology research is done on the scale-dependency of ontologic top level
categorie, i.e. towards advanced physics concepts that emerge on the micro- and macrocosmic
scala. Currently he investigates the impact of semantic and syntactic data standards in contribution
to FAIR Data, in particular to Galaxy computational workflows. He has worked at the European
Bioinformatics Institute in Cambridge, UK, then moved to IMBI Freiburg working on medical data
integration and until recently, he worked in the mass spectrometry and bioinformatics department
of the Leibniz Institute for Plant Biochemistry in Halle, Germany.
ORCID: 0000-0001-8014-6648
Larry Lannom is Director of Information Services and Vice President at the Corporation for
National Research Initiatives (CNRI), where he works with organizations in both the public and
private sectors to develop experimental and pilot applications of advanced networking and
information management technologies. Mr Lannom’s current work is focused on CNRI’s Digital
Object Architecture, which is based on the concept of the digital object, a uniform approach to
representing digital information across computing and application environments, both now and
into the future. Mr. Lannom joined CNRI in September of 1996. Prior to that, he was a Technical
Director at DynCorp, Inc., where he served as an advisor on digital library research for the ISTO,
CSTO, and ITO offices of the US Defense Advanced Research Projects Agency (DARPA), including
initiating the Computer Science Technical Reports (CS-TR) project, DARPA’s first effort in the digital
library area. Inoltre, he managed the development of internal information systems for DARPA.
Originally trained as a librarian, his earlier work included reference book publishing and information
retrieval research.
ORCID: 0000-0003-1254-7604
Dimitris Koureas is currently head of the department for the development of international
biodiversity research infrastructures at Naturalis Biodiversity Center, Coordinator of the new pan-
European Research Infrastructure DiSSCo and chair of the COST Action Mobilize. He holds a PhD
in plant systematics with post-doctoral expertise acquired in biodiversity informatics/e-taxonomy.
He participates as a senior manager in many European projects in the areas of biodiversity data
and infrastructures. He is former chair of the Biodiversity Information Standards (TDWG) organization
and current member of the Technical Advisory Board of the Research Data Alliance (RDA). He is
an invited lecturer on biodiversity infrastructures in European universities.
ORCID: 0000-0002-4842-6487
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Alex Hardisty is Director of Informatics Projects in the School of Computer Science and Informatics
at Cardiff University, where his leadership contributions in environmental, biodiversity and
ecological informatics have spanned engineering of large-scale distributed computing systems
(e-Infrastructures), curating scientific information in knowledge infrastructures, virtual research
environments, and socio-technical issues of new technology adoption. Alex leads work in the EU
Horizon 2020 ICEDIG project on “innovation and consolidation for large scale digitization of
natural heritage”, a part of the Distributed System of Scientific Collections (DiSSCo) programme,
where he is presently designing the global architecture for Digital Specimens and Collections. As
a technical innovator, Alex has previously been responsible for the Biodiversity Virtual e-Laboratory
(BioVeL), the Reference Model for research infrastructures for environmental sciences (ENVRI RM),
and the “Bari Manifesto” for an interoperability framework for Essential Biodiversity Variables (EBV).
Alex is a Chartered Information Systems Professional Fellow of the British Computer Society (BCS)
and Member of the Chartered Management Institute (CMI). Prior to joining Cardiff University
In 2002, Alex worked as a consultant, systems engineer and software programmer in the
telecommunications and defence industries.
ORCID: 0000-0002-0767-4310
Jeremy G. Frey is a Professor of Physical Chemistry and leads the artificial intelligence (AI) for
Scientific Discovery Network. For many years he has investigated and developed e-Science the
way digital infrastructure can enhance the intelligent creation, dissemination and analysis of
scientific data.
ORCID: 0000-0003-0842-4302
Stuart J. Chalk is applying semantic data modelling approaches to represent experiment and
computational scientific data. He is an advocate of open and FAIR data and a Titular member of
the IUPAC Committee on Publications and Chemical Data Standards (CPCDS).
ORCID: 0000-0002-0703-7776
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Shelley Stall is the Senior Director for the American Geophysical Union’s Data Leadership
Programma. She works with AGU’s members, their organizations, and the broader research community
to improve data and digital object practices with the ultimate goal of elevating how research data
is managed and valued. Shelley’s recent work includes being the program manager for the Enabling
FAIR Data project engaging over 300 stakeholders in the Earth, spazio, and environmental sciences
to make data open and FAIR targeting the publishing and repository communities to change
practices by no longer archiving data in the supplemental information of a paper but instead
depositing the data supporting the research into a trusted repository where it can be discovered,
managed, and preserved.
ORCID: 0000-0003-2926-8353
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Leah R. McEwen is the Chemistry Librarian at Cornell University, where she manages digital
library and information services for chemistry and related research and learning communities. She
is an active volunteer in many chemistry organizations and is currently chair-elect of the Committee
on Publications and Cheminformatics Data Standards of the International Union of Pure and
Applied Chemistry. For the past several years, she has been building up a global community of
stakeholders involved in chemical data publishing and sharing, including researchers, publishers,
librarians, repositories, and software developers. She has worked across sectors and disciplines,
connecting with other scientific unions and data initiatives to identify gaps and develop collective
workflows to facilitate FAIR data exchange across the chemistry enterprise and beyond.
ORCID: 0000-0003-2968-1674
Lesley Wyborn is an Adjunct Fellow with the National Computational Infrastructure at the
Australian National University and the Australian Research Data Commons. She worked for
Geoscience Australia from 1972 A 2014 in both scientific research (geochemistry and mineral
systems) and in geoscientific data management. In geoinformatics her main interests are developing
international standards that support the integration of Earth science datasets into transdisciplinary
research projects and in developing seamless high-performance data sets that can be used in
High Performance Computing environments. She is currently Chair of the Australian Academy of
Science “National Data in Science Committee”. She was awarded the Australian Government
Public Service Medal in 2014, IL 2015 Geological Society of America Career Achievement Award
in Geoinformatics and the 2019 US Earth Science Information Partners Martha Maiden Award.
ORCID: 0000-0001-5976-4943
Nancy J. Hoebelheinrich is a founder and principal of Knowledge Motifs LLC, a company
focused upon providing consulting, project management / coordination, grant writing and
educational / training services to business, non-profit, and governmental organizations needing
assistance in organizing, managing, archiving and preserving data. She has been involved in a
number of projects focused upon managing data in leadership, coordination, community
engagement, and education / training roles as both a volunteer and a contractor. Key projects
including the Enabling FAIR Data project where she served as Co-Chair of the Technical Adoption
Group for training on FAIR data, and the ESIP-hosted Data Management Training Clearinghouse
where she is currently serving as Editor, and as Co-Investigator and Project Coordinator on a 3 year
National Leadership Grant from the Institute of Museum and Library Services.
ORCID: 0000-0002-6797-7903
Ian Bruno is Head of Strategic Partnerships at the Cambridge Crystallographic Data Centre (CCDC)
which has been managing and curating scientific data for over 50 years. Ian himself has over 25
years’ experience in the world of Chemistry and Informatics. He is an active participant in research
data activities and initiatives through the Research Data Alliance and the World Data System and
is involved in data-related activities of the International Union of Pure and Applied Chemistry
(IUPAC). He is Secretary to the InChI Trust which oversees the maintenance and development of
the IUPAC International Chemical Identifier. Ian’s various roles at the CCDC have included software
development and management of technical and scientific teams and projects. In his current role,
he is responsible for shaping the CCDC’s interactions with wider research data activities and
communities.
ORCID: 0000-0003-4901-9936
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Ramon Granell is a researcher at the Oxford e-Research Centre currently working as a knowledge
engineer with Professor Susanna-Assunta Sansone in the area of data management for biomedical
sciences. He applies data analytic techniques to enrich data/publications repositories and platforms
utilised under the FAIR (Findable, Accessible, Interoperable and Reusable) principle. Ramon has
been working at the Oxford e-Research Centre since 2010, investigating in different areas such as
energy analytics and computational linguistics. Before that, he worked at Department of computer
Scienza, University of Oxford. He holds a Computer Science degree and ML master from the
Universidad Politecnica de Valencia (Spain).
ORCID: 0000-0001-9572-0972
Allyson Lister completed a BA (1997) in Biology and Ancient Mediterranean Civilisations from
Rice University, an MSc (1999) in Computational Biology from the University of York and a PhD
(2012) in Computer Science from Newcastle University. In 1999, she joined the European
Bioinformatics Institute as a Software Engineer for UniProtKB, a protein sequence database. In
2006, she joined Newcastle University as a full-time Research Associate while completing her PhD
in semantic data integration. Between 2012 E 2014, she also worked for the University of
Manchester on various short-term ontology development projects. Allyson moved to the Oxford
e-Research Centre in 2015 where she is currently working on the FAIRsharing project.
ORCID: 0000-0002-7702-4495
Hugh Shanahan is a Professor of Bioinformatics in Centre for Systems and Synthetic Biology and
Department of Computer Science at the University of London, His research interests include the
analysis of transcriptomic data and the inference of regulatory gene networks; Protein-DNA
interactions; expertise is in computational biology and statistics.
ORCID: 0000-0003-1374-6015
Milo Thurston is currently one of the developers of BioSharing, as well as working on TeSS in
collaboration with colleagues in Manchester. Previously, he developed the OBOE system for
managing services to be used by Scratchpads, and prior to that was the Scientific Computing
Support Specialist for Climateprediction.net responsible for server maintenance, software and
infrastructure development. His scientific background is in biology and bioinformatics, and he is
experienced in Linux system administration; he has a degree in microbiology and genetics from
Dundee University, a D.Phil. in virology from Oxford University (supervised by the late Bill
Hamilton) and previously qualified as an RHCE. Outside his scientific work he is involved in
teaching and research into Historical European Martial Arts, having founded a school in 1999 E
subsequently written a modern training manual based on Sir William Hope’s 1707 fencing text.
He has taught and competed at martial arts events in the UK, US, Canada, Australia, Sweden,
Austria and Germany.
ORCID: 0000-0002-6468-9260
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Hana Pergl Sustkova is the Operations Officer at the GO FAIR International Support and
Coordination Office (GFISCO). Hana supports key activities of the GFISCO including the FAIR
Convergence Matrix coalition coordination. Prior to joining the GFISCO, Hana worked as project
manager for the ELIXIR research infrastructure, which marked her transition from an international
corporation to the academic sphere. Her background is business administration and management.
ORCID: 0000-0002-4462-6465
Jan Slifka got his Master’s degree in Software Engineering at the Czech Technical University in
Prague. He is now a PhD student there, focusing on evolvable systems and functional programming.
He acquired hands-on experience from the industry while working as a senior developer for several
startups with a wide range of technologies. He is also a member of ELIXIR-CZ Interoperability
Platform where he works as a chief User Interface developer on the Data Stewardship Wizard. Lui
collaborates with GO FAIR, building the FAIR Funding Ecosystem.
ORCID: 0000-0002-4941-0575
Markus Stocker is Head of the Knowledge Infrastructures Research Group at the TIB Leibniz
Information Centre for Science and Technology. He holds a PhD in Environmental Informatics from
the University of Eastern Finland; a MSc in Environmental Science from the University of Eastern
Finland; and a Diploma (MSc) in Informatics from the University of Zurich, Svizzera. His
research interests lie at the intersection between research infrastructures and research communities,
and how such infrastructures acquire, maintain, and share scientific knowledge about human and
natural worlds.
ORCID: 0000-0001-5492-3212
Mark Musen is Professor of Biomedical Informatics and of Biomedical Data Science at Stanford
Università, where he is Director of the Stanford Center for Biomedical Informatics Research. Dr.
Musen conducts research related to open science, intelligent systems, computational ontologies
and biomedical decision support. His group developed Protégé, the world’s most widely used
technology for building and managing terminologies and ontologies. He has served as principal
investigator of the National Center for Biomedical Ontology and of the Center for Expanded Data
Annotation and Retrieval (CEDAR). Dr. Musen directs the World Health Organization Collaborating
Center for Classification, Terminology, and Standards at Stanford University, which has developed
much of the information infrastructure for the authoring and management of the 11th edition of
the International Classification of Diseases (ICD-11). Dr. Musen was the recipient of the Donald
UN. B. Lindberg Award for Innovation in Informatics from the American Medical Informatics
Association in 2006. He has been elected to the American College of Medical Informatics, IL
Association of American Physicians, the International Academy of Health Sciences Informatics, E
the National Academy of Medicine.
ORCID: 0000-0003-3325-793X
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Margreet Bloemers is project leader for FAIR data & data management at the Netherlands
Organization for Health Research and Development (ZonMw). Margreet promotes creating and
reusing FAIR data in several contexts: she develops innovative approaches and coordinates
procedures for data management in ZonMw’s research programs; at the National Platform Open
Scienza, she is one of the project leaders for introducing open science in academia in the
Netherlands. In the field of antimicrobial resistance, she is work package leader for Research
Infrastructures at the Joint Programming Initiative Antimicrobial Resistance. Also, she participates
in the international consortium VALUE-Dx for innovative diagnostic strategies for more personalized
antibiotic therapy in community care settings. Finalmente, Margreet advises about the implementation
of research findings from ZonMw funded projects into policy and practice. Margreet is trained as
a biologist, and got her PhD in developmental biology at the Hubrecht Institute in Utrecht, IL
Netherlands.
ORCID: 0000-0003-3710-3188
Mark Hahnel is the CEO and founder of Figshare, which he created whilst completing his PhD
in stem cell biology at Imperial College London. Figshare currently provides research data
infrastructure for institutions, publishers and funders globally. He is passionate about open science
and the potential it has to revolutionize the research community. For the last eight years, Mark has
been leading the development of research data infrastructure, with the core aim of reusable and
interoperable academic data. Mark sits on the board of DataCite and the advisory board for
Directory of Open Access Journals (DOAJ). He was on the judging panel for the National Institutes
of Health (NIH), Wellcome Trust Open Science prize and acted as an advisor for the SpringerNature
masterclasses.
ORCID: 0000-0003-4741-0309
Dan Valen joined Figshare as its first US-based employee in early 2014 to help researchers and
organizations navigate trends in research data management. In his current role, he focuses on the
development of Figshare community through engagement, strategic partnerships and educational
outreach. Prior to working in the research data space at Figshare, Dan spent over 6 years at one
of the largest scientific, technical, engineering and medical (STEM) publishers holding positions in
editorial, trade publishing and electronic content licensing.
ORCID: 0000-0002-9479-6438
Sarah Jones coordinates work on the DCC’s Data Management Planning tool – DMPonline – and
undertakes research on data policy and data management planning. Sarah is involved in several
European Commission funded projects including, FOSTER+, OpenAIRE and Research Data Alliance
Europe 4.0. Her work in a European context focuses primarily on training, data management
planning and network building to facilitate open science. She co-chairs the RDA Active DMP
Interest Group and the CODATA Working Group on Research Data Science schools. In a personal
capacity, she is rapporteur on the European Commission’s FAIR Data Expert Group and a member
of the Open Science Transport Research Cloud Expert Group. In previous roles, Sarah led the Data
Audit Framework project and Incremental. She worked in HATII at the University of Glasgow from
2006–2017, initially for the AHDS Performing Arts data centre and then for the DCC, and is now
based in Glasgow University Library.
ORCID: 0000-0002-5094-7126
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Tomasz Miksa has been working as a researcher at SBA Research since October 2012. He received
In 2011 his MSc in systems and computer networks from the Wroclaw University of Technology,
Poland. In 2016 he received his PhD in computer science from the TU Wien for his work on
verification and validation of scientific workflow re-executions. He was involved in preservation
of business processes in the EU-funded FP7 project TIMBUS. Inoltre, he took part in the FP7
4C Project which aimed to clarify the costs of curation of digital assets. Currently, he is a chair of
the DMP Common Standards working group at the Research Data Alliance (RDA) and a co-founder
of RDA Austria. His research focuses on reproducibility of eScience experiments and machine-
actionable data management plans. Topics of interests include, but are not limited to: experiment
context modelling, verification and validation, data repository architectures and workflows, digital
curation and preservation.
ORCID: 0000-0002-4929-7875
Robert Samors serves as the Coordination Officer for the Belmont Forum e-Infrastructures & Data
Management Project. In that role, he coordinates and liaises with e-I & DM project leads, Action
Theme co-leads, stakeholders, Advisory Group and Oversight Committee members, and international
partners to encourage the adoption of data principles and best practices, promote effective data
planning and stewardship, and develop training curricula to enable practitioners to put those
principles and practices into action through Belmont Forum agency activities and funded projects.
Prior to joining the Belmont Forum, Mr. Samors served as Senior External Relations Manager for
the Group on Earth Observations (GEO) designing and implementing GEO’s engagement strategy.
He has worked closely with experts and global leaders in data and information issues across a
range of governments and international scientific and technical organizations. His earlier positions
have included serving as Associate Vice President for Innovation and Technology Policy at the
Association of Public and Land-grant Universities (APLU), as Associate Vice President for Federal
Relations for the University of North Carolina System, and as Assistant Vice President for Research
at the University of Michigan. He holds a Masters in Public Policy from the Harvard University
Kennedy School of Government, and a B.A. in Economics from Brown University.
ORCID: 0000-0003-3737-0120
Judit Ungvari is an ecologist by training, with expertise in aspects of avian biology in tropical
habitats. She studied birds in the Peruvian Amazon region combining both lab- and field-based
research and received her PhD degree in Zoology with a certificate and concentration in Tropical
Conservation and Development at the University of Florida in 2016. Judit then worked as a
postdoctoral scholar at the Smithsonian Institute in Washington, DC, addressing conservation issues
in agroecosystems in Colombia. She has become involved in local capacity building and community
outreach both in the USA and Latin America and has mentored dozens of students to complete
independent research projects. Her interests include increasing diversity and broadening
participation in the sciences, sustainability science, science diplomacy, supporting open and
reproducible research efforts, and communicating science to the public, especially in museum
settings. As a AAAS Science & Tech Policy fellow at the National Science Foundation, Judit is
working on various international activities facilitating transdisciplinary global change research,
including the advancement of e-infrastructures and data management planning.
ORCID: 0000-0002-5180-8048
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Rowena Davis was a project coordinator for the Belmont Forum e-Infrastructures and Data
Management project, a three-year project (2016–2019) facilitating data sharing among teams
performing research for the Belmont Forum, a coalition of major and emerging international
funders of global environmental change research. She has been co-chair of the EarthCube Liaison
Team (2018–2019) and a co-chair of the RDA Mapping the Data Landscape Interest Group (2017–
2019).
ORCID: 0000-0002-9424-0325
Tina Lee was the Principal Investigator for the Belmont Forum’s e-Infrastructures and Data
Management Project, a three-year project (2016–2019) whose goal was to make operational the
Belmont Forum Open Data Policy & Principles in its collaborative funding program. Funded by
the US National Science Foundation and four other international science funding agencies, IL
e-I&DM project coordinated with numerous international data and research organizations to
develop resources for data management planning and training for Belmont Forum’s global
environmental change community. She is currently the user engagement officer for the CyVerse
project, a cyberinfrastructure platform for life sciences computational research based at the The
University of Arizona in Tucson.
ORCID: 0000-0002-5284-7751
Ron Dekker is the director of CESSDA ERIC, the Consortium of Social Science Data Archives, con
its main office in Bergen, Norway. CESSDA is a European Infrastructure with 20 members (countries)
and combines the work and expertise of these countries’ social science data service providers, Vedere
www.cessda.eu. On behalf of CESSDA, he is also the coordinator of the Social Sciences &
Humanities Open Cloud project (SSHOC). He is a member of the European Open Science Cloud
Executive Board and serves in several strategic advisory boards. Ron studied econometrics and
worked for ten years in labour market research at Dutch universities. He was at the national
research council for almost twenty years – running a data agency, program committees and in
general management (institutes, infrastructure and open science). This included secondment to the
Dutch government for project leadership on Open Science of the Dutch EU Presidency in 2016
and as national expert at the European Commission in Brussels in 2017.
ORCID: 0000-0003-0989-4963
Associate professor Margareta Hellström is a senior staff member at ICOS Carbon Portal, working
with research data management issues such as Open Science, persistent identifiers, data citation
and usage statistics and FAIR. She has represented ICOS in several Horizon 2020 projects, including
ENVRI-FAIR where she leads the work package on FAIR training and skills development.
ORCID: 0000-0002-4154-2610
Luana Sales, PhD in Information Science of the Instituto Brasileiro em Informação em Ciência e
Tecnologia (IBICT). She is a researcher and a professor at the Master and PhD courses in Information
Science in IBICT and a professor of the Master Program in Library Science of The Universidade
Federal do Estado do Rio de Janeiro (UNIRIO). She is the GO FAIR Brazil coordinator.
ORCID: 0000-0002-3614-2356
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Patrícia Henning, PhD in Sciences-Information and Communication in Health of the Instituto de
Comunicação e Informação Científica e Tecnológica (ICICT/FIOCRUZ). Professor of the Master
Program in Library Science of The Universidade Federal do Estado do Rio de Janeiro (UNIRIO).
She is the representative of the GO FAIR Brazil coordination office in The Netherlands.
ORCID: 0000-0003-0739-6442
Viviane Veiga, PhD in Sciences – Information and Communication in Health of the Instituto de
Comunicação e Informação Científica e Tecnológica (ICICT/FIOCRUZ). She works at Fundação
Oswaldo Cruz (FIOCRUZ) coordinating the FIOCRUZ libraries network. She is a professor at ICICT
of Maters and PhD program and is the GO FAIR Brazil-Health coordinator.
ORCID: 0000-0001-8318-7912
Maira Murrieta Costa, PhD in Information Science of the Universidade de Brasilia (UnB). She is
the Technologist of the Ministério da Ciência, Tecnologia, Inovações e Comunicações (MCTIC).
MCTIC Business Intelligence and Information Coordinator. She is responsible for drafting MCTIC
Open Data Plan and MCTIC representative for National Open Data Infrastructure.
ORCID: 0000-0002-8324-2114
Luís Fernando Sayão, PhD in Information Science of the Instituto Brasileiro em Informação em
Ciência e Tecnologia (IBICT). He works at the Comissão Nacional de Energia Nuclear (CNEN). Lui
is a member of Conselho Nacional de Arquivos (CONARQ). He is Professor of the Master Program
in Library Science of the Universidade Federal do Estado do Rio de Janeiro (UNIRIO) and the
Program in Memory and Collections of the Fundação Casa de Rui Barbosa.
ORCID: 0000-0002-6970-0553
Luís Ferreira Pires, PhD in Electrical Engineering of the University of Twente. He is Associate
Professor of the Faculty of Electrical Engineering, Mathematics and Computer Science, and member
of the Services & Cyber-Security (SCS) group. He has co-authored more than 150 scientific
publications and has contributed as PC member to various international conferences and is co-chair
of the MODELSWARD conference.
ORCID: 0000-0001-7432-7653
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Mia Stokmans is an Associate Professor at Tilburg University, Tilburg School of Humanities and
Digital Sciences. She holds a Master of Science in Economic Psychology as well as Research
Methods from Tilburg University and a PhD in Consumer Decision Making from Delft University
of Technology. Stokmans is a member of the Research Network Globalisation, Accessibility,
Innovation and Care. Her fields are the role of attitudes and emotions in human decision making,
social processes for behavioral change and mixed method approaches to research.
ORCID: 0000-0002-7593-9632
Munyaradzi Mawere is Professor and Research Chair at Great Zimbabwe University’s Simon
Muzenda School of Arts, Culture and Heritage Studies. He holds a PhD in Social Anthropology
from the University of Cape Town, South Africa. He also holds three Masters Degrees in the areas
of Philosophy, Social Anthropology and Development Studies. Mawere has participated in a wide
range of research projects which include Culture and Heritage Sustainability in North-west
Zimbabwe, Environmental Conservation in Southeastern Zimbabwe, and Health Services Utilisation
in Masvingo, among many others. Mawere is an internationally renowned researcher and author,
with over 75 books to his credit.
ORCID: 0000-0001-8696-9282
Mariam Basajja is currently pursuing a PhD in Computer Science at Leiden University Netherlands.
Her topic is on “Designing a FAIR Data Point for Digital Health in Uganda”. Her main focus is on
how data-integration through FAIR data supports overcoming lack of sustainability of Digital Health
Solutions in Uganda. She holds a Master’s degree in Advanced Computing Machine Learning, Data
Mining and High Performance Computing from University of Bristol, UK. She also has a Bachelor’s
degree in Applied Computer Technology with a concentration of Software Engineering. Mariam is
also a member of the African Women In IT Africa (AfricanWIT) Group whose aim is to accelerate
the progress of the African Women in the field of Information Technology.
ORCID: 0000-0001-7710-8843
Antony Otieno Ong’ayo is an academic Researcher at the International Institute of Social Studies
of Erasmus University in The Hague. He holds a Bachelor degree in Political Science, a Master
degree in Political Science (Politics and development) from the University of Stockholm, rispettivamente
and a PhD in Humanities (International Development) from Tilburg University. He is an associate
researcher with Globalization, Accessibility, Innovation and Care (GAIC) and member of the
Implementation network Go-FAIR Africa. His research interests are in the areas of politics of
development, migration and development, digital citizenship and governance.
ORCID: 0000-0002-3461-7960
Primrose Nakazibwe holds a PhD from Tilburg University, Netherlands where she defended her
thesis titled Gender and Commodity Chain Analysis. She holds a Master’s (MA) and a Bachelor’s
in Development Studies from Mbarara University of Science and Technology. She is a senior
lecturer, Mbarara University of Science and Technology in the Faculty of Interdisciplinary Training
and Research, and senior lecturer at the Faculty of Social Sciences, Ndejje University, Uganda. She
is a founding head of Department for Gender and Women Health Degree program at Mbarara
University of Science and Technology.
ORCID: 0000-0003-2758-3106
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Christine Kirkpatrick oversees the San Diego Supercomputer Center’s (SDSC) Research Data
Services division, which manages infrastructure, networking, and services for research projects of
regional and national scope. Kirkpatrick is a recognized expert in the implementation of research
computing services, with an emphasis on data science workloads, as well as operational
cyberinfrastructure (CI) at scale. Kirkpatrick founded and hosts the US GO FAIR Office at SDSC, È
the Executive Director of the US National Data Service (NDS), and Co-PI and Deputy Director of
the West Big Data Innovation Hub (WBDIH). She co-chairs the All (Big Data) Hub Infrastructure
Working Group and is co-PI of the Open Storage Network. Kirkpatrick received her master’s degree
from the Jacobs School of Engineering at University of California San Diego. She serves on the
Technical Advisory Board (TAB) for the Research Data Alliance (RDA), and the external Advisory
Boards for the European Open Science Cloud (EOSC) Hub and EOSC Nordic.
ORCID: 0000-0002-4451-8042
Kudakwashe Chindoza holds a Master of Commerce degree in Information Systems from
Great Zimbabwe University (2015) and a BSc Information Systems Honours degree from Midlands
State University (2006), in Zimbabwe. He is currently a lecturer at Great Zimbabwe University
in Zimbabwe. His research interests are ICTs for Sustainable Development, Digital Healthcare
Data Management, Interoperability of Heterogeneous Systems, and Governance of Web Based
Technologies.
ORCID: 0000-0002-8346-5211
Carsten Baldauf received his PhD in Biochemistry from Leipzig University. After postdoctoral visits
to TU Dresden and CAS/MPG-PICB Shanghai, he joined the Theory Department at Fritz Haber
Institute of the Max Planck Society in Berlin in 2010. Since 2013, he has been leading a research
group that deals with accurate simulations of biomolecular structure and dynamics. Carsten teaches
courses at Freie Universität Berlin and Leipzig University. In 2018, he got involved in the process
of founding the association“FAIR Data Infrastructure for Physics, Chemistry, Materials Science and
Astronomy e.V.” (in short: FAIR-DI, https://fairdi.eu) and has since then developed an interest in
data infrastructures and ontologies.
ORCID: 0000-0003-2637-6009
Paul Trilsbeek is the head of The Language Archive at the Max Planck Institute (MPI) for
Psycholinguistics. He studied Sonology at the Royal Conservatory in The Hague, after which he
worked as a music technologist within the Music, Mind, Machine research group at Radboud
Università. In 2003 he started working at the MPI for Psycholinguistics.
ORCID: 0000-0001-9502-1960
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Herman van Vlijmen graduated with a Master’s degree in Bio-Pharmaceutical Sciences at Leiden
University in The Netherlands and a PhD degree in Physical Chemistry at Harvard University. Lui
worked nine years at the biotech company Biogen in the Boston area, ultimately as Senior Scientist,
in the computational design of small molecule drugs and protein therapeutics. In 2005 he joined
Tibotec, a Johnson and Johnson company focusing on infectious diseases, as Director of
Computational Drug Design. He is now Head of Computational Chemistry in the Discovery
Sciences organization at Janssen, Pharmaceutical companies of Johnson & Johnson, located in
Belgium. Since 2008 he is also Adjunct Professor of Computational Drug Discovery at Leiden
Università. Herman has more than 70 peer reviewed publications and is inventor on eight patents.
He is the Industry Project Leader of the IMI FAIRplus project, which is developing best practices
in FAIRification of data from IMI projects and internal pharma data.
ORCID: 0000-0002-1915-3141
Albert Mons is one of the founding partners of Phortos Consultants, a consultancy practice to
academic institutions and private companies specializing in FAIR data and services solutions. Over
the years Albert and his partners have founded and cofounded a number of start-ups in the field
of bio-informatics & semantics, data integration and support, network solutions and big data
solutions. One of them is Euretos, a platform provider for AI driven hypothesis generation and
InSilico Target/Biomarker Discovery and Validation. Recentemente, Albert has been appointed International
Project Manager GO FAIR running the global Business Development and coordinating the partners
in the technical Implementation process lead. In addition he was a member of the writing team
for the European Open Science Cloud Implementation movement “GOFAIR”. Albert also provides
FAIR trainings focusing on FAIR Data Stewardship, Ontology and Semantic Modeling and related
FAIR services. Recentemente, in collaboration with the GO FAIR Foundation, Albert initiated (and now
chairs) the GO FAIR Service Provider Consortium including, amongst others, Accenture, KPMG,
Deloitte, and several SME’s providing professional FAIR related consulting and implementations.
ORCID: 0000-0001-8038-7572
Wouter Franke is a consultant for the Dutch National Health Care Institute with a background
in Computer Science and Change Management. He has extensive experience with large
implementations of data exchange programs in complex networks of public and private organizations
within the Dutch healthcare. Since 2017 he has been working on both research and development
of FAIR and the Internet of FAIR Data & Services, and the implementation of FAIR within programs
run by the Dutch National Health Care Institute. His goal is to ensure data within healthcare are
available to a wide range of stakeholders and can be interpreted by machines. This in turn will
greatly increase the value of existing and emerging capabilities in the field of data science,
ultimately resulting in better prevention and healthcare systems.
ORCID: 0000-0001-5058-3767
Arie Baak is one of the co-founders of Euretos, an AI platform used by (pre-)clinical researchers
to take a in-silico, systems biology approach to the identification & validation of targets, biomarkers
and indications. For the first two decades of his career, Arie has worked in various customer facing
strategic innovation roles in the mobile telecoms and Internet infrastructure markets. In this high
performance/high volume environment he has been developing analytics solutions that provide
actionable insight to end users long before the term “big data analytics” became fashionable. Since
2010 Arie has been applying his expertise to the life sciences where has worked with some of the
world’s leading pharma, biotech and academic institutions to develop a data & AI driven approach
to life sciences research.
ORCID: 0000-0003-2829-6715
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Bert Meerman is the Director of the GO FAIR Foudation (GFF). GFF supports the International
GO FAIR Office, mainly in the area of paving the wave for implementing a coherent certification
program. Bert is a senior business executive with a successful track record in Finance, Network,
Information and Data technology. Bert has worked in a variety of management roles in different
countries, mostly for American software companies. In addition, Bert has been the Secretary
General of the International Factors Group, a consortium of finance companies where he
implemented a successful worldwide data-exchange platform, based upon agreed network
protocols and EDIFACT standards. Bert is a business economist, with an MBA from the Erasmus
University in Rotterdam.
ORCID: 0000-0002-0071-2660
Renger Jellema, PhD, DSM Biotechnology Center (The Netherlands), has a track record of more
di 20 years working in the field of chemometrics and data science. His roots are in analytical
chemistry for which he obtained a Bachelor’s degree in 1992. Renger studied chemistry at the
University of Nijmegen (Radboud University) which he finished in 1995. Subsequently he did his
PhD at the University of Amsterdam in a collaboration with the steel company Corus. After a short
appointment at the Central Bureau of Statistics (CBS) he obtained a position at TNO Quality of
Life, Zeist where he worked in the field of chemometrics as Product Manager of the product group
“Analytical Information Sciences” until 2009. In his current employment at DSM, Renger is active
in the field of data science where he is involved in several projects to extract more value out of
data and implement digital tools within a Biotechnology environment.
ORCID: 0000-0003-2435-6178
Scott Lusher is Janssen’s business technology leader for cheminformatics systems and Discovery
Sciences globally, providing strategic technology partnership for 700 scientists, from medicinal
chimica, computational chemistry, data sciences, screening, compound logistics and Drug
Metabolism and Pharmacokinetics. In this role he is responsible for developing and executing
strategic plans for data-driven and compute-intensive research practices, initiating new projects
and management of the overall portfolio of technology projects to enable small molecule discovery.
Prior to joining Janssen, he was director of strategy and applied eScience at the Netherlands
eScience Center in Amsterdam, enabling scientific IT approaches across Dutch academia. During
this time, he participated in the original FAIR workshop and is a coauthor of the resulting publication
setting out the FAIR principles. Scott’s background is computer-aided drug discovery having spent
fifteen years applying computational chemistry approaches in pharma and consumer product
organizations.
ORCID: 0000-0003-2401-4223
Derk Arts has over 12 years of experience in medicine, research and data management, and has
been involved in several projects integrating complex and diverse data sources. He received his
MD from Vrije University in 2011 and his PhD on decision support and machine learning from
the University of Amsterdam in 2016. During his MD training, Dr. Arts identified a major problem
in medical research. Due to the unavailability of affordable, user-friendly data capture tools,
researchers were deviating to non-compliant alternatives that reduce data quality, security, E
reusability, and greatly increase waste. To solve these core issues, he founded Castor, a research
platform that enables researchers to easily capture, standardize and reuse medical research data.
The platform is currently serving thousands of clinical studies, both commercial and academic,
and has been integrated with EPIC and other EMR systems, using HL7 FHIR. Castor is capable of
generating machine readable data, which is one of the most promising capabilities for eClinical
systems.
ORCID: 0000-0001-5702-5856
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Sebastiaan Knijnenburg is Chief Technology Officer at Castor EDC. With a PhD in Medical
Informatics and clinical research, Dr. Knijnenburg is dedicated to providing researchers with
advanced software to improve healthcare and research quality. He is passionate about data
standardization and FAIR data and implementing FHIR in the context of clinical research.
ORCID: 0000-0002-2475-6254
Rudi Verbeeck, senior IT manager, holds a degree in civil electrotechnical-mechinical engineering
(major: electronics) and in civil biomedical engineering from the university of Leuven (Belgium).
He obtained a PhD in applied sciences on medical image processing with applications in
stereotactic neurosurgery (University hospital Gasthuisberg, Leuven) In 1996, awarded with the
IBM Belgium prize for informatics. He continued in the same hospital as a post-doc in the
radiotherapy department to establish a stereotactic radiosurgery capability. He joined Janssen
Pharmaceutica in 1998 as a project manager in the IT department responsible for projects in
bioinformatics, chemoinformatics and statistics for discovery research. He gained experience in
clinical data management when he moved to Tibotec in 2008. Recentemente, he has been involved
in the IMI/EMIF project (European Medical Information Framework) where he developed data
harmonization methods based on semantic Web technology. He is currently involved with the IMI
FAIRplus project and with FAIR data and ontology management implementations in Janssen.
ORCID: 0000-0001-5445-6095
Karsten Kryger Hansen is research data management coordinator at Aalborg University, E
works with RDM in a broad perspective, covering many aspects of the life cycle of research data.
Daily activities ranges from institutional perspectives on data management with the focus of being
a change agent, to everyday support for specific research projects.
ORCID: 0000-0002-2407-8764
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